SOMETIMES, EVEN THE EXPERTS NEED ASSISTANCE…
Best practices for conversations about serious illness and advance care planning continue to evolve as the Baby Boom generation ages and medical care advances. The Putnam County Hospice and Palliative Care Association supports healthcare professionals by offering tools, resources, and information on a variety of communication and advance care planning topics. We collaborate with partners locally and throughout the country to provide the most up-to-date information, research, and continuing education resources.
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WHAT ARE ADVANCE DIRECTIVES?
Advance directives (ADs) are legal documents a person completes - while still in possession of decisional capacity - about how treatment decisions should be made on her or his behalf in the future – in the event she or he loses the capacity to make and/or communicate such decisions. They are legal tools directing treatment decision-making and/or appointing surrogate decision makers for the future. Advance directives are only acted upon if the patient loses the ability to make decisions and/or speak for him or herself. Advance directives may be revoked orally or in writing by the patient at any time (so long as he or she has maintained decisional capacity).
Advance care planning research has demonstrated that advance directive documents, in and of themselves, without additional preparation and discussion, have minimal effect on end-of-life decision-making. The literature strongly identifies the importance of repeated, meaningful reflection and discussion among patient, family, and health care providers as being a critical factor in effective advance care planning. While the existence of an advance directive makes a difference, the real driver for having patients’ wishes known and honored is the conversation before and during any clinical episode.
Resources:
Myths and Facts about Healthcare Advance Directives – American Bar Association
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MEDICARE REIMBURSEMENT FOR ACP
Advance Care Planning conversations and completion of advance directives are reimbursable by Medicare.
Resources:
Centers for Medicaid and Medicare – Advance Care Planning
End of Life Care Conversations: Medicare Reimbursement FAQs – Conversation Ready -
TYPES OF ADVANCE DIRECTIVES RECOGNIZED IN INDIANA
There are several types of advance directives and every state has laws governing them. Information for Indiana can be found on the Indiana State Department of Health website.
Resources:
Indiana State Department of Health – Advance Directives Resource Center
Indiana State Department of Health - Advance Directives Brochure – Your Right to Choose1. Healthcare Representative Appointment or Healthcare Power of Attorney (may also be known as Healthcare Proxy, or Healthcare Surrogate). A health care representative is a person your client chooses to receive health care information and make health care decisions for your client if or when he/she cannot. It is recommended that your client consider choosing a secondary healthcare representative in case the primary is unable to serve.Resources:
The Conversation Project - How to Choose and Be a Healthcare Proxy
Choosing a Healthcare Representative - PCHPCA
Choosing a Legal Healthcare Representative – The Optimistic Project
How to Select a Healthcare Proxy – American Bar Association
Guide for Healthcare Proxies – American Bar Association
Indiana Healthcare Representative Appointment Information
Indiana Healthcare Representative Appointment Form2. Living Will. A living will is an advance directive that lists the specific care or treatment a person wants or does not want during a terminal condition should the person become unable to speak for him or herself. A living will often includes directions for cardiopulmonary resuscitation, artificial nutrition, maintenance on a respirator, intubation, and blood transfusions. A living will informs the person’s physician and family which life-prolonging treatments should not be used so the person is allowed to die naturally. Prior to completing a living will, your client should understand about various life-sustaining procedures and what they can and cannot do.Resources:
The Optimistic Project – Treatment Decision Aids
CPR or No CPR: What you should know
Tube Feeding: What you should know
Help with Breathing: What you should know
Antibiotics: What you should knowIndiana Living Will Declaration Form
3. Life Prolonging Procedures Declaration This document is the opposite of a living will. Your client may use this document if he/she wants all life-prolonging medical treatments used to extend his/her life. Prior to completing a life prolonging procedures form, your client should understand about various life-sustaining procedures and what they can and cannot do.Resources:
The Optimistic Project
CPR or No CPR: What you should know
Tube Feeding: What you should know
Help with Breathing: What you should know
Antibiotics: What you should know
A Guide to Comfort Care
Indiana Life Prolonging Procedures Declaration Form4. Organ and tissue donation. A person who wishes to donate organs may include his or her choice in their will, living will, on a card, or other document. If your client does not have written documentation regarding organ donation, someone else will make the decision for your client. A common method used to show that you are an organ donor is making the choice on the Indiana driver’s license. When your client gets a new or renewed license, the client can ask the license branch to mark his/her license showing he/she is an organ donor. -
WHAT ARE PHYSICIAN ORDERS?
Physician orders are documents that a physician signs designating specific medical treatments that the patient or the patient’s legally designated health care representative indicates are in the patient’s best interest.
- Physician orders are effective immediately. They are based upon a patient’s current medical condition and current wishes.
- Physician orders must be signed and dated by the patient (or his/her legal representative) and by the physician (or physician’s assistant, or advanced practice registered nurse). The Out of Hospital Do Not Resuscitate Declaration and Order must also be signed by two witnesses.
- Physician orders are revocable. They can be revoked orally or in writing by the patient or the patient’s healthcare representative at any time.
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TYPES OF PHYSICAN ORDERS RECOGNIZED IN INDIANA
1. Out of Hospital Do Not Resuscitate (DNR) Declaration and Order. Indiana law allows a qualified person to say they do not want CPR given if the heart or lungs stop working in a location that is not a hospital. A physician must certify that the patient has a terminal condition or that resuscitation would likely be unsuccessful. This order may override other advance directives. Prior to completing, the patient should understand about various life-sustaining procedures and what they can and cannot do.
Resources:
CPR or No CPR: What you should know - The Optimistic Project
Indiana Out of Hospital Do Not Resuscitate Declaration and Order Form- Indiana Physician Orders for Scope of Treatment (POST). The Indiana POST is a physician order for treatment determined by a patient’s goals and the treatment options available to the patient. Orders are based on the individual’s current health situation. In consultation with the patient and/or the patient’s legal healthcare representative, a physician will write orders that reflect patient wishes with regards to cardiopulmonary resuscitation (CPR), medical interventions (comfort measures, limited additional interventions, or full treatment), antibiotics, and artificially administered nutrition. Prior to completing, the patient should understand about various life-sustaining procedures and comfort care and what they can and cannot do.
It is recommended that completed POST forms be printed on Astrobright’s Pulsar Pink 65lb paper for inclusion in patient files and records.
Five features make the POST useful:
- Recognizable, standardized form;
- Addresses not only code status, but a variety of other treatment categories;
- Allows patients to determine their healthcare plan;
- Converts treatment preferences into immediately actionable medical orders;
- Transfers across treatment settings with the patient, including pre-hospital.
To be eligible for a POST, a person must have at least one of the following:
- An advanced chronic progressive illness.
- An advanced chronic progressive frailty.
- A condition caused by injury, disease, or illness from which, to a reasonable degree of medical certainty there can be no recovery, and death will occur within a short period without the provision of life-prolonging procedures.
- A medical condition that, if the person were to suffer cardiac or pulmonary failure, resuscitation would be unsuccessful or within a short period the person would experience repeated cardiac or pulmonary failure resulting in death.
Indiana POST Resources:
The Indiana POST Program
The Indiana POST for Healthcare Providers
Using the Indiana POST Form: Guidance for Healthcare Professionals
Indiana POST information for healthcare professionals
Indiana POST information for patients
The Indiana POST Program – FAQ’s
Indiana POST and Advance Directives EMS Study Guide
Indiana Physician Orders for Scope of Treatment (POST) FormOther Resources:
National Physician Orders for Life Sustaining Treatment (POLST) Program
Comparison: Living Will/Out of Hospital Do Not Resuscitate Order/Physician Orders for Scope of Treatment.The Optimistic Project – Treatment Decision Aids
CPR or No CPR: What you should know
Tube Feeding: What you should know
Help with Breathing: What you should know
Antibiotics: What you should know
A Guide to Comfort Care for Patients and Families -
WHAT SHOULD PATIENTS DO AFTER SIGNING ADVANCE DIRECTIVES?
Good advance planning for healthcare is a continuing conversation and a work in progress because circumstances change, and lives change. One’s values and priorities may even change.
Resource:
What to do after signing your advance directive? American Bar Association
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RECOMMENDATIONS FOR REVISITING PATIENT ADVANCE DIRECTIVES
The American Bar Association recommends that individuals revisit and discuss their advance care plans and documents whenever any of the “six Ds” occur:
1. You reach a new DECADE in age.2. You experience the DEATH of a loved one.3. You experience a DIVORCE.4. You receive a DIAGNOSIS of a significant health condition.5. You experience a significant DECLINE in your functional condition.6. You change your DOMICILE or someone moves in with you.